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RareLink featured by npj Genomic Medicine

Adam Graefe · M. Abboud (Samer) Alkarkoukly · Ana Grönke · Oya Beyan · 28 Jan 2026
Screenshot of npg Genomic Medicine Homepage showing featured RareLink publication
Overview
Summary

Our PhD student Adam Graefe published his research in npj Genomic Medicine. The RareLink, a REDCap-based interoperability tool to improve data sharing and interoperability, is featured by the publishers. We are happy to reach out to more clinical researchers and look for collaborations to further the adoption of our framework.